Life is always changing. You’re always going to struggle with something. One of my biggest challenges is a lack of privacy. I have absolutely zero privacy. Nothing is able to be kept in private. I can’t go somewhere or do anything without at least one person knowing about it. I’m lucky if I can keep it to just one person knowing about it.
Most people can do things without anyone knowing. They can go buy a gift for themselves, make a phone call, read a magazine or go to an appointment without answering to someone else. It is very frustrating to never have anything personal.
An area where I wish I had more privacy is health care. Since I need assistance in getting to various appointments, it becomes a group thing. I need help getting on an exam table. I can’t use my computer to talk while I’m laying down so I need someone there who can read my lips. It is just frustrating to always have to fight to get others to realize and accept that I can make my own decisions and handle things. This issue is fueled by the fact that I need assistance to do most anything. Caretakers will invariably feel like they should be a part of every decision because it affects them in some way.
How do you cope? I can’t seem to figure it out.